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Lawmakers, immigration advocates and doctors are urging Immigration and Custom Enforcement Officials to stop the deportation of New London resident Julian Rodriguez. Rodriguez's 14 year-old son Santi has a rare genetic condition called Chronic Granulomatous Disease, or CGD, which requires regular treatment at Connecticut Children's Medical Center.

Connecticut Senator Richard Blumenthal calls this deportation case unique because Santi and his mother are participants in a research study at the National Institutes of Health that could lead to a cure for CGD.

Chairman of the Joint Chiefs of Staff / Creative Commons

U.S. President Donald Trump signed an executive order Wednesday halting the at-the-border separation of immigrant children and families. Coming up, we wade through the details of the decision and consider its significance moving forward. 

Later, we talk about chronic pain and its impact on young children. We hear from a Connecticut mother whose son was diagnosed with amplified musculoskeletal pain syndrome (AMPS) and learn about the out-of-state program that treated him.

Sickle Cell Patients Suffer As Disparities In Care And Research Persist

Jun 6, 2018
Jeremy Brown, 9, sits with his mother Tangi Small in their Bridgeport apartment.
Derek Torrellas / C-HIT

When 9-year-old Jeremy Brown is in pain, it feels like he is being stabbed, while the pain experienced by Deborah Oliver, 40, is like a hundred simultaneous charley horses.

Ed Uthman / Creative Commons

In the U.S., an estimated 100,000 Americans live with sickle cell disease, or SCD.

Yet, despite its impact, the disease and its patients remain largely out of the public eye.

This hour, C-HIT reporter Peggy McCarthy helps us understand why. We discuss the realities of SCD awareness and hear from a New Haven resident living with the disease.

Plus: inside U.S. drug courts.

What approach do these programs take in addressing the nation’s opioid crisis? And are they accessible here in Connecticut? We find out. 

Stamford Hospital

Connecticut consumers were billed for more than $1 billion in facility fees for outpatient services in 2015 and 2016, documents filed with the state Office of Health Care Access (OHCA) show.

Chion Wolf / WNPR

In light of mismanaged abuse allegations involving two former staffers, U.S. Congresswoman Elizabeth Esty announced Monday she will not seek re-election in November.

This hour, we discuss the significance of Esty's decision -- including what it means for Connecticut's Fifth Congressional District race this year.

Plus: With former VA Secretary David Shulkin out, what lies head for U.S. Veterans Affairs? Is the federal agency on track to become privatized? We find out.

And finally: We sit down with a local Army veteran who recently received a discharge upgrade. Could his story help other Connecticut veterans with less than honorable discharges? 

Frankie Graziano / WNPR

So far this winter, more than 60 people have died in Connecticut of the flu. In many of those cases, the actual cause of death is respiratory failure -- the lungs stop working.

The American Red Cross has raised the alert on its blood supply to "critical" -- the last step before "emergency."

Chion Wolf / WNPR

This hour: following reports of abuse by staff at Connecticut’s maximum-security psychiatric unit -- news of an order separating Whiting Forensic from Connecticut Valley Hospital. 

Coming up, we discuss the significance of the split -- including what it means for the safety and oversight of patients.

Norwalk Hospital

Norwalk Hospital says its cancer treatment services have benefitted from a new partnership with New York’s Memorial Sloan Kettering. 

Daniel Paquet / Creative Commons

Earlier this month, the Centers for Disease Control and Prevention declared that influenza is now widespread in Connecticut.

Wikimedia Commons

A gun buy-back sponsored by local legislators, law enforcement, and medical professionals will take place this Saturday in Hartford and New Haven.

C-HIT

The overall number of “adverse events” reported by Connecticut hospitals declined in 2016, but sexual assaults more than doubled, according to a new state report.

C-HIT

Health insurer Anthem's dispute with Hartford HealthCare is over. The state's largest insurer, and one of its largest hospital groups announced on Saturday that they had come to terms, in the seven week-old contract dispute.

Ryan Caron King / WNPR

When we met Dr. Bolivar Arboleda Osorio in the city of Caguas a few weeks back, he talked about his experience treating patients in the aftermath of the storm -- first came the trauma victims, then came the chronic and severe cases that were becoming emergencies as time dragged on and the lights stayed off. Electronic records were stuck in the cloud. Patients, not able to call for an appointment, just showed up.

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